educational materials, e-learning
Patient-Centered Outcomes Research Institute (PCORI) Training : A Program for Rare Disease Patient Advocates
In response to rare-disease patients’ desire to make research more meaningful to their community, PCORI created an online Program for Rare Disease Patient Advocates.
Keywords: Rare Diseases & Research
Target audience: Patient Advocates , rare disease patients representatives
Resource type: educational materials, e-learning
Scientific topics: Rare diseases
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